RelUnrelated had an appointment this morning to see the results of his PET and CT scans that he had done recently. To put it mildly the doctor isn't happy with the results of the chemotherapy and has decided that he needs to have stem cell (bone marrow) transplants. I'm not happy about this because honestly, this is going to be harder on him than the chemotherapy was. And our safety net is gone. The cancer center we've been going to does not do this. This treatment is very expensive and is something we could never hope to be able to pay for. Unfortunately we may have to see if he can get on Medicaid. Our place of employment does not offer any type of health care whatsoever and I can't even hope to scrape together enough money to pay for premiums on any type of health insurance. I have had to borrow money as it is to pay the bills some months and every time I have had to ask for help it makes me angry at myself.
So we're back to that some feeling I had back in May when he was admitted to the hospital half dead. And yes, finances were the reason the reason he got as ill as he did. That and stubbornness. In the end I out stubborned him and he went in to the ER and something was finally done. We've hit another stumbling block however and I'm feeling kind of helpless again. This fucking sucks. I hate this feeling. I hate those stupid lymph nodes that didn't "melt" away like the rest of the nodes.
The options right now are the transplants, which will be done most likely with his own cells, harvested after boosting his system with Granulocyte-colony stimulating factor, which is what he was taking a day after getting his chemotherapy to increase blood cell production and build the system up for another dose of chemotherapy. The cells can be harvested, if they use his own in two ways. They can go into the bones directly, usually the pelvis, and extract bone marrow. He had this done after his first chemotherapy treatment on a small scale to make certain the cancer hadn't spread to his bones. It was done outpatient and in the office. It was also quite painful. I watched the entire procedure. A small incision was made and an instrument, not unlike an ice auger or cork screw was used to get right into the pelvis and to the marrow. The item is a hollow needle and aspirates and bone marrow can be drawn right out of this procedure. It was not pleasant or pain free. The bone is bored into. Hopefully this is not how they choose to collect the cells. Hopefully they use the second method which is to extract the cells from the blood itself. We can only hope. It isn't going to be pleasant. After enough cells are harvested he then has to have very high dose chemotherapy that will basically kill everything. Which is where the transplant comes in. To rebuild his body.
This is not the only option we have. The other option that the doctor is not happy about, and I understand why she doesn't want to do it, due to the location and the reasons. Localized radiation. The locations kind of make this difficult. One of the places is quite near the heart. You don't want to irradiate your heart. Actually, you don't want to irradiate any part of your body, but especially your heart. It's not safe. And the other location is right under his collarbone. There are two nodes, one quite a bit larger than the other one. Near the esophagus. I can see this being a problematic location as well due to one's ability to eat and what radiation does to a person. The stem cell option is the best option to prolong life. She hinted at this, delicately. And then added that he was young and had plenty of years left in him. She mentioned one hospital in St. Louis and another in Chicago. He's meeting with someone tomorrow about the money side of this whole mess and then to do one of the two pulmonary tests he's got to have on Wednesday.
Here we go, barreling into the great unknown again. And no, I don't feel like praying or gnashing my teeth at some sky fairy. Please don't offer to pray. Honestly don't. I'm not in the mood for it and I may invite you to become intimate with yourself or jump into a combustion of wood and expire. And no, this isn't some fucking religious trial of some sort. Nor is it a punishment for some failure on his part. This is a failure of cells in a body. It happens and not for any specific reason. It just sucks some major ass that we can't quite breath a sigh of relief yet.
'Curb Your Enthusiasm' Does Wordle
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I play Wordle everyday as a mental exercise and I mostly lose my streaks by
either traveling or forgetting to do the word of the day, but I have been
foo...
7 hours ago


















